I went to clinic with Lola last week armed with a list of questions that would make any one nauseous. Every now and then I do that, I just like to make sure everyone knows that I am a completely crazy mom who will do whatever it takes for my child. So… as a result of my crazy mom moment that day Lola is now scheduled for Surgery next week (Oct 7) to have her port-a-cath removed. This is BIG for Lola at this point. The port is meant to be a helpful piece of medical equipment, that helps both the medical staff and the child, making it easier on them so that they don’t always need to have IV’s in their arms etc. But…. Lola’s port went a bit hay wire a few months ago and it started not working as it was supposed to and she kept having to have dye studies done on it, and it would be difficult to get blood draws, and her poor nurse would really have to wiggle the needle around in Lola to get things to work. It was AWFUL. As a result of that, even though the port has been fine lately Lola has some HUGE issues with it. She greatly prefers to be poked in the arm over her port and she is really just scared of having her port accessed. She really wants it gone. So… for the sake of Lola, we are glad she is finally reaching a point in her treatment where she does not need the port and it will soon be gone!!
As for Lola’s treatment….. She is now ready to move into the section of treatment called ‘maintenance.’ She will be on Maintenance for about 2 years. Lola is currently on a trial, and prior to beginning maintenance she will be randomized into 1 of 4 different treatment options. Here is where you all come in. We REALLY need your prayers for this. This is another time where we are completely helpless in our daughters care. We have to rely on a computer that will randomly put her into a treatment plan. But… I think we all know our amazing father God is in the ultimate control of this. Of the 4 treatment options, two of them Lola will have to take a steroid chemo for one week every 4 weeks. The other 2 options she will need the steroid chemo for one week ever 12 weeks. Now. Here’s the thing about the steroid. It ruins Lola’s life. It makes her so depressed. Back at the beginning of our adventure with Leukemia it was the steroid that caused Lola to stop talking. When she is on it is a struggle for our whole family. Lola will find a patch of sunlight on the floor, and lay on the floor all day long under a blanket doing nothing. It is nearly impossible for me to engage her in anything. It is awful. And I do not know that I can endure that for 24 weeks in the next 2 years.
So it is our prayer that God will have Lola placed into whatever arm of the treatment she needs to be in. And it is also our prayer that where she needs to be is in Arm C or D, where she will have steroids every 12 weeks. We are asking you to come along side us for the next week in prayer for Lola. We can find out what arm she is in 72 hours before she begins treatment, which puts us at next tuesday. So please pray hard specifically about this until then!! I know that there are people all over the place praying for our family and I can not tell you how much that means to us.
And on to our next ‘issue.’ I have been sick as a dog since friday. I’m OK being sick… life goes on, BUT Lola CAN NOT get sick. For one thing, if she gets a fever its an automatic trip to the hospital and…. it is not good if she is sick when she is scheduled for surgery and for her treatment to start. So please also be praying for that. Thankfully I seem to be on the upswing of whatever it is that I have, and I only had a fever for a few hours on saturday. My kids have runny noses, but no other symptoms. Pray that they just stay with runny noses and don’t catch what I have!!! Thankfully I have the world’s greatest husband who has been playing super dad/house keeper/ food cooker/ take care of Lindsey person. He is home from work today holding down the fort while I am in seclusion in my bedroom for the 3rd day. Oh… and if your considering living without a TV I would like to encourage you to think long and hard about what you will do if you ever get sick. I am BORED out of my mind!!! I thought the ‘no TV’ thing was a great idea…. until this happened!!! Thankfully Super Matt to the rescue!! He dug out an old TV and an antenna for me this morning so I could watch the today show and whatever other junk is on during the day 
Here’s a picture of me. If I had blond hair. And if I wore pig-tails. And if I had a teddy bear. Well… I guess this really looks nothing like me.
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